Five things you should know about CFS
Published: May 7, 2009
Updated: September 22, 2009
I’ve already kicked off International Chronic Fatigue Syndrome & Fibromyalgia Awareness Day on May 12 a little early with my post on Five Things You Should Know About Fibromyalgia, and I’ve returned with more information, but this time about the chronic illness Chronic Fatigue Syndrome. Once again, no hilarity, no breaking news stories, just some information I think you should know.
Five Things You Should Know About Chronic Fatigue Syndrome
1. The hallmark of Chronic Fatigue Syndrome is fatigue, but it isn’t “normal” fatigue. When a healthy person is tired, they can rest or sleep to relieve fatigue, but a person with CFS cannot. Sleep and rest don’t help and activity can make the exhaustion worse.
2. Up to 75 percent of patients with Chronic Fatigue Syndrome potentially have or have been diagnosed with Fibromyalgia as well. That is up to 3 million people.
3. There are 4,000 confirmed abnormalities between a CFS patient and a healthy individual, yet none of these abnormalities have been identified as a cause or as a diagnostic marker.
4. 1-4 million people in the United States have CFS yet only 20 percent have been properly diagnosed with the illness and are receiving the proper treatment.
5. Chronic Fatigue Syndrome has been said to be as functionally disabling as Multiple Sclerosis, AIDS, End-stage Renal Disease and Chronic Obstructive Pulmonary Disease.
To learn more visit C-Street May 12 from 11a.m.-1 p.m.


Thanks for this post. You’ve hit a lot of the important things people should know about myalgic encephalomyelitis (aka chronic fatigue syndrome). #1 is especially important.
To your list I would add:
6. ME/CFS doesn’t only involve crushing fatigue. Sufferers also experience considerable chronic pain.
7. People diagnosed with ME/CFS have a lower life expectancy.